It’s already May 12 here in Australia which means it is Fibromyalgia Awareness Day. A perfect day to share some arse kicking words written by a strong fibro fighter. He runs the two Facebook pages mentioned above, check them out.
It may be Fibro Awareness Day but not much of a change in routine is happening for me, simply off to work. The one main difference is that my parents arrive. My parents live approximately 900km away so I don’t get to see them as much as I would like. Luckily, I have regular holidays and am generally able to go down to them or they are able to come up to me.
I’m not currently on holidays though which means I will be at work during the day while my parents are here. Why are they coming while I’m working? Because I am the luckiest daughter in the world, that’s why. By the time my parents get here they will have spent a day and a half driving and it’s all so they can help me out. My boyfriend works away from home and is sometimes gone for long periods of time. Currently, he has been gone for a week and a half. This may not seem like a long time to the average person, but to a person living with fibro, to me, it’s LONG. You see, when my boyfriend is away at work, I have to look after the homefront all on my own. This means taking care of the dog, cleaning the house, taking the rubbish out to the bins, putting the bins out, collecting the mail, doing the laundry … all of the mundane stuff that some people can do without even realising they’re expending any energy.
Now some of these things can wait – and they do. My beautiful boyfriend often comes home from working away (and it’s long hours of hard, physical labour) only to take care of the house for me – the cleaning, washing, maintenance etc. Most of these things can wait, or can at least be pushed to their limits until I absolutely have to do them (like running out of clean underwear). The one thing that can’t wait however, is cooking. Call me crazy but I have to eat everyday. Being able to cook everyday however is just not possible. Not while I’m also working. Sometimes I am able to plan around my eating needs, cooking a meal on Sunday night that I can eat again on Monday and Tuesday. Cooking again on Wednesday… you get the drill.
Unfortunately, this routine does not always work. Sometimes due to pain, sometimes fatigue. A couple of months ago my girlfriends found out I was eating rubbish for dinner (think a packet of chips) and started dropping around meals. Did I mention what amazing friends I have? As beautiful as my friends are, I felt bad about them doing this. Not so much the actual dropping around of food, but the worry. I knew they were concerned about me and the fact that I wasn’t taking care of myself as I should have been. As a 32 year old woman, I felt awful that my friends were spending their time worrying about whether I was eating properly. This was one of the things that helped me decide to drop back my hours at work.
As soon as I told my parents my boyfriend was off for another long stint they made plans to come up. Today my parents arrive to help me out, take the load off me by looking after the household duties so that I can work and rest. What amazing parents I have. So fibro, yes, you may win some little victories some of the time but I will always get back up. Sometimes I will need a little help doing so but that’s okay.